Abstract Library

#2901 Data is Power - Registry Experience at an ENETS COE

Introduction: The collection of anonymised data for patients with neuroendocrine tumours is necessary for the ongoing improvement of patient care and research/clinical trials.

Conference: 17th Annual ENETSConcerence (2020)

Presenting Author: Hogg A

Authors: Hogg A, Stell A, Marusic P, Sinnott R, Cummins M,

Keywords: PROMS, mobile phone app, registry,

#2028 Education and Preparation for Nuclear Medicine Procedures in Neuroendocrine Tumor Patients

Introduction: In 2007, a coalition of health care organizations formed around the a unified goal of improving imaging safety and quality for adults (Image Wisely) and children (Image Gently). In 2008, the Society of Nuclear Medicine (SNMMI) joined this coalition, embracing its role in providing outreach to the patient community. The Society has created an annual patient program to reach patients and caregivers, and is continually seeking input from the patient community to improve the program and other online educational resources.

Conference: 15th Annual ENETSConcerence (2018)

Presenting Author: Mailman J

Authors: Mailman J, Budzinski L,

Keywords: Imaging, Nuclear Medicine,

#1326 Clinical Nurse Specialist in NET Patients at Institut Català d’ Oncologia - ICO

Introduction: A Functional Unit model brings together multidisciplinary professionals participating in a committee. Its aim is to optimize diagnostic and therapeutic intervals, get consensus on the best-individual treatment option & best evidence. Our unit-NET, was establish 10 years ago & last 4 got a clinical nurse specialist-CNS

Conference: 13th Annual ENETSConcerence (2016)

Presenting Author:

Authors: Sánchez-López C, Fernández-Ortega P, Teulé A,

Keywords: Clinical nurse ,

#1319 Neuroendocrine Cancer Patient Experience Survey

Introduction: Annually a national patient cancer survey (NCPES) is performed to assess perceived patient care. It was noted that in the previous cancer experience surveys patients with NET had not been invited to participate. The NET Patient Foundation (NETPF) commissioned Quality Health to undertake this survey in patients with a known diagnosis of neuroendocrine cancer. The patients were identified via NET centres of excellence around England.

Conference: 13th Annual ENETSConcerence (2016)

Presenting Author: Srirajaskanthan R

Authors: Bouvier C, Sissons M, Srirajaskanthan R,

Keywords: Diagnosis and referral, communication, information, explanation, treatment, CNS, support,

#992 Phase 1 and Phase 2 Clinical Trials Investigating Targets Against the Molecular Hallmarks of Gastroenteropancreatic Neuroendocrine Tumors

Introduction: Recently there have been many advances in the diagnosis and treatment of gastroenteropancreatic neuroendocrine tumors (GEP NETs), accompanied by significant improvements in our understanding of GEP NET biology. A number of well-established or novel molecular hallmarks are involved in GEP NET tumorigenesis and may help in identifying potential diagnostic or therapeutic targets.

Conference: 11th Annual ENETSConcerence (2014)

Presenting Author: Tamagno G

Authors: Tamagno G, Crespo G, Fierro Maya F, Fossmark R, Igaz P,

Keywords: neuroendocrine tumor, clinical trial, hallmark,